Dearly Departed Drawings ~ Kole {day 343}

June 21, 2008

 

"What a better start to a day! Kole had a nice breakfast (which stayed down) and spent most of the morning snuggling with daddy. Cousin Karley was here with us and boy did she entertain him...We got many smiles and giggles today from Kole. He really likes when you pop bubbles and play peekaboo. He also maintained a really nice lunch of pizza, soup, and a couple baby carrots. Right now he is sitting up in his crib (by himself!) and playing with some trucks, a new keyboard (thanks Carol!) and his shapes-sorter toy (he can do them all!). I feel like the cleanest person in the world, wiping washing wiping washing. I seem to be more level headed today, and I think that Kole's happy energy is flowing into me. Thanks be to God for all the blessings of the day so far. Thanks Maureen, for your wonderful prayers of healing that you placed upon Kole at yesterday's visit. We have been praying over Kole constantly, that the living tumor will bow to the name of Jesus and shrink, and Kole will be healed. Daddy had to drive home today, so it's a bit lonesome for me, but I am enjoying some one-on-one with Kole. The guardianship charity account that is set up at Commerce Bank for Kole has some glitches, apparently, people have been trying to donate and there have been some roadblocks internally at the bank. We apologize, and this will be straightened out very soon. Also, WGAL News 8 wanted to do a story on Kole last night, but we said no, not yet, we aren't prepared for that yet. Cameras in his room...not sure about that because his immune system is down on account of the chemo. That's why everyone has to be so clean all the time....Besides, we had dinner plans! Thanks, Andrea, everything was soooo wonderful and we enjoyed ourselves immensely being out of the hospital for awhile. It was nice to meet the owner of Dafnos, John. This afternoon, we are getting ready to change diapers, read some books, and take a nap. Today we will also give Kole a bath for the first time since we arrived (besides the spongebaths). I think this will relax him. We love you all, and feel you all have been placed in our lives strategically by the hand of God. Thanks again for all your messages, they lift me up so high.

I had to miss a family reunion today and just wanted to let those of you who were there know that Kole and I were there in spirit. Thank you for all the wonderful food you sent and for giving my husband so much support when he stopped in. He said he really feels like a part of the family now and it really means a lot to him/us. We still didn't hear about the apartment, but think we will by Monday. It stinks that this will have to be such a quick move if we do end up getting the apartment. Thank you to ALL of you who volunteered to help us move, stand by your phones and emails, we may be taking you up on this!! Although our living quarters are small, we have garnered a lot of "stuff" through the last (almost) seven years we have been married and you know how that goes (clutter!). A Kole update...he is doing well this evening. He had a great dinner, hamburger, chips, and mandarin oranges. His heart rate is still quite high, and they are monitoring him closely not only because of this, but because his ANC (absolute neutrophil count) is very low, which means he is extremely susceptible to infection. I am learning all these new medical terms, bear with me. So tonight they gave him a GCSF, which is medicine that helps his white blood cell count come back up. Also, the gave him another vincristine injection, which is a type of chemo that he needs every 7 days at least for now. This makes his mucous membranes irritated, I think, because he can't stop picking his nose or the insides of his mouth, and he usually doesn't do this. I think he also has developed some sort of nervous issue, as well, as he is now a nail biter and never bit his nails his whole life. Anyways, he is watching Baby Einstein right now. He just got weighed, and he is still losing weight. So we are trying to fatten him up. Lots of Pediasure! I will do my best to keep everyone updated...I have been told that there are many people out there who look forward to hearing the progress of the day. Thanks for praying for Kole so diligently, he is on prayer chains in many towns and states and I am awestruck at the response we have received to our prayers. God bless."



Worked a bit on Koles face today, some spindles and the basket.  Had to take off from drawing for a few days to complete custom tie dye sheets, tapestries, shirts to finish Christmas orders in our shop.  (My method takes more than one or even three days to complete the entire tie dye process.)  But I am back at it today.  I missed holding the pencils and the scratch on the paper.  I've been thinking about how I accomplished my mission to draw more in 2014 and have been contemplating what I will choose for 2015.