I worked for over an hour last night. I also fell in love with this photo of him. I can see why his mother chose this one, I see it in his eyes, tousled morning hair and his beginnings of a large grin. I am enthralled with his story and the survival of his mother through his medical journey.
"Then he developed a low-grade fever. No matter what I did, I couldn't get it to go down. He seemed sweaty and his breathing seemed labored. He was very clingy and I could tell he didn't feel well. He whimpered and whined which he never did. He was diagnosed with pneumonia on a Friday and got worse over the weekend. His skin was pallid, his lips were blue, and he could barely sit up by himself. X-rays ordered were inconclusive. By Monday, after a brief but chaotic series of tests at the pediatricians office, he was rushed by ambulance to the York Hospital and put on oxygen immediately. They pushed me around on a gurney for hours from room to room, test to test, while I held him in between my legs on my chest. More X-ray. Ct scans. Blood work. The whole mess. Finally we waited. Before long, a parade of people in white coats from the radiology department walked in to our room with somber faces."
As the photo of Kole emerges I will be sharing parts of his story through his mothers heart as she allows us a glimpse into her private hell. Every parents worst nightmare I imagine. His medical journey started at age two, an age where understanding is only beginning. How do you explain the need for x-rays, CT scans, drawing blood, remaining still to a toddler? How as a parent do you remain strong and calm as your child undergoes testing for an unseen, unknown problem?
Great start..the blog and the drawing.
ReplyDeleteSincerely Sunrose