"Before long, a parade of people in white coats from the radiology department walked in to our room with somber faces. My mom was there. Sitting in a chair. I was holding Kole over my shoulder and just walking around snuggling him. The doctor spoke first. He claimed they found a mass in my sons chest via CT. My mom fell out of her chair. I clutched Kole tighter. I asked if it was big. He said yes. I asked what was going to happen. He told me the hospital didn't have the proper treatment for Kole and that he would have to go to Hershey Children's Hospital. Our regional pediatric oncology specialists. That meant he thought my sons gigantic tumor was cancer. The doctors walked out one by one. A man with curly light brown hair came over to me and told me how sorry he was. I went numb as I felt the pieces of understanding falling into place. The helicopter arrived within 5-10 minutes. I don't remember feeling anything but Kole, wrapped in my arms.
And as the pilot medic took him from me all I could think about was
holding him again and I had to rush there to be with him."
June 11, 2008
Kole's chopper ride to HMC went well. Kole has a large tumor in his thoracic/abdomen. It has compromised his breathing slightly, but he isn't severe enough to be in the Pediatric Intensive Care Unit yet, so we are in the intermediate area. It is also causing his airway to be shifted, but not closed, which is good. There is also extra fluid around his heart, although the echo-cardiogram he had this morning showed strong pumping action and not quite as much fluid as originally thought. He has had many tests so far and we have only been here 16 hrs. A biopsy of the mass was taken this morning. Also, while he was under anesthesia, we consented to having his left lung drained and a specimen was also taken to evaluate this fluid. They also needed our consent to put a portal/IV in his neck area as the one in his arm was being compromised by movement. He also has one in his foot. Everything went well today, as well as it could. Kole is slightly uncomfortable but managing the whole experience quite well. We will have an answer as to what this "thing" is in his chest tomorrow, and then a plan of action as to how we will deal with it. Please pray this evening for us, as that is all we can ask or hope for right now! Speedy diagnosis, full recovery.
Today in beautiful bright sunlight I managed to get more basic lines down and a better grasp on the crib spindles. They are going to be the death of me. Clearly I need more work on repeated patterns as nearly every portrait has had a repeating pattern as a large part of the whole picture. His story is so important, his life is so important. He brought love, joy and happiness to those who knew him and tears when he left. His life was meaningful, it had a purpose.
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