Friday, November 28, 2014

Dearly Departed Drawings ~ Kole {day 332}

June 16, 2008 
"When we arrived at the hospital this morning, the nurse said she had some interesting news. Kole figured out that if he scootched himself forward, he could reach back and grab his tubes, and I'll-be-darned if he didn't yank out his own feeding tube. I had to laugh, but slightly concerned because they had it running straight into his intestines....I thought, this can't be good. But he's fine, and actually he has starting drinking Pedialyte from a sippy cup this morning. One sip at a time. He may be able to try to eat some soft foods today also. They removed his arterial line today, but still haven't been able to hold him. Also they took out his catheter so we are back to diapers. They are leaving the chest tube in because his lung is still draining. They are at this moment, giving Kole a breathing treatment, an xray, and another echocardiogram. It looks like a parade going out the PICU door. But they want to do these tests before he is moved, he is moving out of PICU and down to hemonc in the next hour or two. Finally we will have our own room. I will let everyone know exactly where we end up as soon as I know for sure. Thank you for all your prayers, things are slowly looking up and we appreciate all the love we have been shown. Kole thanks you all, and we look forward to seeing our Monday visitors.

Breathing treatments are going well, xray came out great. Won't get the results of echo until tomorrow, but they honestly don't expect much change this soon. They said because this is a muscular tumor, that it won't reduce in just days, but soon enough there will be some lung and heart relief. We are finally out of the PICU!! Great news. This means they aren't concerned enough about his vitals to keep him in constant check. We are now in hemonc. It is more private and we have our own fridge and bathroom. Kole is doing quite well considering all the chemo they've pumped into him over the last two days. He can't sit up or quite hold himself properly, very weak. His voice is starting to come back, though. He is talking, but not much. He sounds very quiet and squeaky. He did drink almost an entire sippy cup of Pedialyte/apple juice mix. And he also had some yummy homemade applesauce, but he did spit some up. They said this is normal, as he will probably feel pretty nauseous for a few days. But we are happy he actually ate. He is watching Care Bears right now in his new bed with his daddy, and seems quite comfortable. Today seemed to be a lot more difficult for me for some reason, its almost like the tables have turned and all this week I have been really strong while Kole wasn't doing well at all, and now that he is progressing, I have seemed to emotionally regress. I think the past week has caught up to me, including the sorrow I felt yesterday as I spent my first Father's day without my dad.

Thank you all for being there for me, especially today's visitors who, without realizing it, 
picked me up when I would have fallen. I love you all."

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