Thursday, January 1, 2015

Dearly Departed Drawings ~ Kole {day 366}

September 1, 2008

"Everything is going well so far with Kole's chemo schedule this time around. No neurotoxicity (yay!), just a bit sleepier than usual. Longer naps, and cranky when he wakes up. He just ate a really good lunch for me and now he is taking a nappy, listening to one of Maureen's CDs. Very relaxing.
I had a gigantic surprise yesterday at the hospital. I was filling Kole's sippy cup with "chock" (chocolate milk), and I turned around and my husband was standing there in the room. I thought I was seeing his spirit or something at first, I had to laugh, but it was truly him in the flesh. He suffered through the nausea and got in the car and drove up here to see me on our anniversary. He just laid and snuggled with Kole most of the evening and tried to keep some food and drink down. He did pretty well, but had to leave when we went to bed, he was too uncomfortable and upon speaking to him today, I learned he spent the entire night vomiting until 8am this morning. Then he slept till noon and called me. He said he is going to call the family doctor to see if they are there today, then call me back. I haven't heard yet. When offices open up again tomorrow, he is going to call the doctor up here at Hershey to set up a visit to discuss the results of all these test results. He is supposed to go to work tonight at 6pm. If he can't make it in, and they give him a hard time once again about the doctor's notes, then I don't know what will happen. We have a few people telling us to get legal counsel, and I think that's what will come next.

The doctors came in this morning to tell me that, after Kole had negative cultures come back (which means they can stop the antibiotics) now another positive culture came back. What a roller coaster. They said two other bacterias were found this time, not the staph like before. What a roller coaster. It's possible that the specimens are just contaminated, they said. Great. Now we will continue antibiotics indefinitely and keep checking the blood. He said, worst case scenario, Kole will need IV antibiotics given at home for a few more days after discharge. I was happy he said that, and not "Well, it's just a few more days here in the hospital than we thought...." Whew. I am ready to go home. This is my favorite time of year, end of summer into autumn. The weather is perfect and I want to be able to take Kole out and enjoy the crunchy leaves!!!

I must get going, many more things to do before Kole wakes up. God bless you all and thank you until eternity. As Maureen sings on her CDs, your prayers for our family have certainly "stirred the healing waters."

September 2, 2008

"I initially thought I would be able to go home Wednesday evening, after Kole's chemo was finished. It now appears, though, that I will have to stay until Thursday. These blood cultures really have the docs baffled, and they just want to play it safe and keep us here to draw more blood before we leave. They are still trying to determine whether to keep him on the vanco (broad spectrum antibiotic) or replace it with something more specific to whats growing in the culture. We just have to wait a couple more days to see what's growing, and then decide on the best antibiotic to treat it. We are going to have home nurses come every day for a few days after we get home to give Kole his medicine through the broviac. Today was a great day for us. Kole ate and drank and played with the best of them and I had a fair amount of visitors to keep me sane.

After this round is over, we come back to the hospital for more chemo on the 15th. Then it's just one more "shot" of chemo before they do another scan to prepare for surgery. A pediatric surgeon by the name of Dr. Cilley will be among the surgeons resecting Kole's tumor. I have heard wonderful things about him.   Just want to say thanks for keeping us in your prayers, gotta get back to the room. God bless."

September 3, 2008

"It now appears that there may be a chance we won't get outta here until Friday. One doc thinks it will be Thursday, but another thinks the labs won't be that fast. At least I know one of them is keeping it real. :)  Kole finished his chemo for this week a couple of hours ago and now he is fast asleep and receiving a blood transfusion. He will get half a bag tonight, and then get another transfusion tomorrow with the other half. He has been so sleepy this evening, I really ran him around earlier to wear him out. He wore ME out. We got to pet Bobby the Newfoundland, a therapy dog that came in to see the kids. Kole loved it.

I had a bit of a breakdown earlier today and had to ask for some help. The chaplain came in and we talked and prayed and I did feel better. I knew it was building up all week, and it just released itself today. Thanks for the prayers you are keeping us in daily. It is really heartwarming, and is helping us through. I talked to my husband a little while ago and he is still struggling. I haven't eaten much all day so I am going out to get a bite and hopefully get to bed early. God bless"

Today I worked on the crib rails, darkening them.  I also worked more on the wall hanging in the background as well as the crib pads, blankets, pillows.  It felt really good today drawing.  I have a new crystal, lithium quartz that I picked out for myself at Christmas and I really enjoy its company.  I want to take it everywhere with me, except its kinda big and heavy.  But very, very pretty and has amazing energy.

No comments:

Post a Comment

365 days of drawing Addyson Aegirine Aldies Review Alice all purpose cleaner Alta View Wellness Center Angel Numbers Angie Yingst Animal Symbolism Apartment life Are You Experienced art Art reading Aura Photo Aura Photography Backcombing Bacon recipe Bacon wrapped chicken Balloonport Beach Life Beach Life Series Because I hate Abbreviations Best Bone-in Chicken recipes Beverly Stephan Bissell Proheat Carpet Cleaner Blessingway Bone-in Chicken Borax recipes Brussel Sprouts Camp Innabah Candy Drawer Carnies Carnival Series Carpet shampooer Catering Chakra Photo Chakra Photography chicken recipe christmas cookie recipe Christmas craze Christmas Shoe box clairvoyant Cleaning Recipes Collective Consciousness colored pencil Conner Cookie recipe Coupons crafts with toilet paper roll Cremation Ashes cremation glass memorial bead Crew Crystal grids Crystal Healing Crystal Therapy Crystal uses Crystals and Minerals Darn it. Dear Departed Drawings Departed Dinner Recipe DIY Down to Earth Wear drawing drawing of a bulb syringe drawing of a snot sucker Drawing of a zombie drawing of an astronaut Drawing of feet drawing of genesee beer drawing of ghastly beer Drawing of Jimi Hendrix Dread bead Dreadie decorations Dreadies Dreadlock Methods Dreadlocks Dreads Dream Catcher Dustin Middaugh Eggleston Hall Engroff Epicurean Delight Evolution of a Drawing Video Family Family Vacation Feeding your family on a budget Feel the wind on your face Fels naptha recipes floor cleaner Food Coma Friend Frugal Shopping Gardening Glass Blowing glass dread bead grandma's cookie recipe Grandpa graphite drawings Hair Handmade Hape twist and turnables Hardiness zones map Harpers Ferry Healer Healing Herman Heroin Robbed Me HK Pinwheel Packs Holiday shopping holiday shuffle home home for the holidays home school Homemade Carpet Cleaner Solution Homemade frenzy Homemade powdered laundry detergent Homeschool Preschool hot air balloon chase crew Hot Air Ballooning Houd House Faery Thefts Humanitarianism Hyperrealism Insecurities Jack Daniels Distillery Tour Joel kids crafts Kings Fresh Meats Review Kole Kombucha Lancaster balloonport last minute Christmas shopping LeDrew crew Leigh Leigh D Baxter Life Life Purpose lithium quartz Little light Living with Strangers Lost shiny trinkets Love Lucia Married life Maryland Meditation Mineral Uses Monster Paintball MOPS Mothers of Preschoolers Moving Moving to a new house Mr. Kromer MUM Expo My Crystals and Minerals Mystic Native American Rituals Natural Healer Neil New house New Moon Circle new year resolution new years resolution Nines Numerology Obsessive Compulsive Disorder OCD Ocean Beach Spirit Cleansing Ceremony Ocean City Ocean City Maryland On the Road Again One Love Operation Christmas Child Pacific Northwest Glassblowing Packing Packing up your house for a move paint Parenthood Pencil Drawings Pennsylvania Dutch Pot Pie Pennsylvania Dutch Sand tarts photo realism Planting zones map Poppa. portrait drawing Portrait of Cosmo Portrait of Dustin Middaugh Portrait of Houd Portrait of Leigh D Baxter Prettying up Dreadies Reithoffer Show Renting Rides Roasted Parmesan Brussel Sprout Recipe Samaritans Purse Sevens Sideshows Smaller Dreads spiritual awakening spiritual experience Stick a screw driver in my eye Still Life with Circles Still Playing School Still. Summer fun Super washing soda recipes Survivor Mama Susquehanna Valley Balloon Company Sweet Pea Project Sweet Pea Sisters and Brothers Picnic Tarot Card Reading Tea tree essential oil Tennessee The Beach The Moon + Stone Healing The Pier The Walking Dead Things to do in Nashville Thinner Dreadlocks tissue paper hearts To Linger on Hot Coals Traveling Twist and Rip Twizzlers U-Haul uses for vinegar Valentines day craft Violet Wax Hands wax museums Wedding West Virginia WV year in review Your Inner Light